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|Survey Information||Take this Survey!|
Completing this survey may provide you useful and helpful information--even though our main purpose is to find out what people like you ALREADY KNOW and what ACTIONS they would be WILLING TO TAKE--once they are adequately informed.
Living in the stage of Advanced Dementia can be very challenging for both patients and their families.
While the survey focuses on the challenges of Advanced Dementia, you may learn a lot by responding to its questions. This information also applies to planning ahead for ANY terminal illness.
|The "Dementia Fear": What do you already KNOW about it? How would you PLAN for it?|
The purpose of this survey is to learn the attitudes of clinicians, attorneys, and pastoral counselors regarding specific end-of-life treatment options that some patients may consider important for several stages of dementia and acute neurological injuries, but which others may consider controversial. Completing this survey will help further this goal: To honor patients' (or clients') wishes to attain a dying that is both peaceful and timely; that is, neither prolonged nor premature.
|Attitudes of Professionals Regarding the "Dementia Fears"|
Take this survey if you want to consider the main goals of Advance Care Planning: to reduce end-of-life pain and suffering and to avoid lingering for a long time in Advanced Dementia. First, read the story of "Edward" (which also can apply to "Edith") where pain and suffering is both emotional and physical due to dementia and cancer. Then consider the options regarding your end-of-life preferences. You can even print out your answers to guide your future decision-makers.
|What are your end of life preferences?|
Confused about such terms as "Brain Dead", Coma, PVS (Permanent Vegetative State), and the Minimally Conscious State? Do you know what you would want for yourself or your loved ones in such states?
|Devastating Brain States: Definitions and Treatment Options|
Is it ever moral to hasten dying? Perhaps it is more appropriate to ask, Is it ever humane to insist on prolonging the natural process of dying? Can we trust others to judge our situation and make the right decision when our time comes? Might some decision-makers be biased? If we cannot trust others, should we consider a more objective clinical standard embodied in new laws? What are the risks of such a radical change in the way our society views such patients?
|Is it Moral to Permit Natural Dying for patients with end-stage dementia?|
The way we die is a subject that will affect us all. Yet, knowledge about how peaceful various ways are is currently scarce. This survey asks those who have direct or professional experience with dying people to rate various ways of dying on a scale whose end points are "causes extreme pain and suffering" and "is totally comfortable and peaceful."
|Different Ways of Dying: How Peaceful are they?|
For people who are now, or will in the future suffer from cancer with extreme pain and suffering, or from Alzheimer's disease and their last years will be associated with no ability to interact with others as they linger in a state of total dependency and indignity (as they define it) only to die from another medical event that may cause additional suffering.
|What, exactly, is an outrageous Physician Order?|